Leaving the therapists office Monday, tears still in my eyes, I was left feeling raw and vulnerable while experiencing an overwhelming amount of mom guilt. Her words crashing through my head on repeat:

“You need to ask his psychologist when enough is enough and he needs committed to the children’s psych ward. It also sounds like it’s time for him to be on medication…”

I feel unprepared to face my reality. The reality that it might be time to consider putting Finn on medication. The reality that after describing the amount of abuse Finn has put me through this week, my own therapist mentioned committing him. Though she wasn’t talking about him being committed today, she did say she noticed that the amount of virtirol and violence towards me was increasing at an alarming rate, so knowing the signs of when a child needs psychiatric intervention is important.

Really though, it feels like the reality is that I’m not enough. That I’ve somehow failed some magic parenting test. I sit in my car and just break down. Huge heaving sobs as the mom guilt cripples me. Oh the mom guilt. Then there is the guilt that I said my deepest fear out loud: “I worry that we’re going to lose Finn like we lost Fredric’s father.”

So I sit in my car, torturing myself. Repeating my fears and self-perceived shortcomings. Allowing the waves of grief and guilt to drown me, before I muster up the courage to call the pediatrician and let them know we need a consult.

I barely hold it together as I describe what I’m calling about. As I hang up, my voice cracking, I muster up the energy to call my best friend Ellie. And I breakdown again. Not even her soothing voice and wise words break all the way through my misery.

I turn to Facebook support groups, but before I can even post, all I see are my fears coming true in others experiences. “I had to call the police on my child and lock myself in my room for safety” “I just had them committed into the children’s psych ward for the 3rd time” and so on. I start sobbing again, terrified that this is my future with Finn. That we are fighting a losing battle, no matter how much therapy and interventions we use.

I know I need more help, so I reach out to a group of local girlfriends to see whose shoulder I can cry on. Amanda invites me over, and I sit on her bed and release all my fears and worries in a torrent of tears and grief. She listens patiently and firmly puts me in my place, telling me everything I need to hear, even though I feel unworthy of the compliments and reassurances.

I leave Amanda’s, eyes swollen and sore, to pick up Finn. He’s in great spirits and I immediately feel better… until we go to the park. At the park, when I tell Finn it’s time to leave he starts berating me and then starts kicking me. I can feel the stares and judgement. I head to yet another girlfriends house, because it’s obvious that I still need support pulling myself out of the black hole of grief that has sucked me in.

She reiterates what both Amanda and Ellie have said, except this time it starts to sink in past my grief. It’s almost as if they talked about me before arriving and decided on a script. I lament “I just thought I had MORE TIME…” Her response is finally what started snapping me out of it:

As a parent we always think we have more time”

It just resonated with me… it was so simple, but so true. Still somewhat doubtful, I decide to let her comforting words be the truth, despite still feeling unworthy of them. I slowly try to let myself heal some, feeling thankful for my tribe.

This. This right here is the struggle of a parent with a child with DMDD. This is what it looks like when we break. I’m slowly picking up the pieces that my emotional rollercoaster left in its wake, but today I feel stronger. I have a plan. I’ve only cried once, when I told his OT that it looked like we were going down the medicinal path. Yet, as I write this, I know I’ll get through it, just like I get through everything else, one day, one hour, one minute at a time.

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“I hate you. I hate everyone. I want you to kill me. Someone needs to kill me. I don’t want to be alive anymore. Kill me now. What does blood taste like. I’m going to drink all my blood. You hate me you hate me you hate me. You don’t love me. Everyone hates me. I want to die”

Finn, Age 4 

Everything written above, was said by Finn, to me, in the span of 5 minutes this morning. This morning is our first back at OT and school since break. He’s been becoming more and more dysregulated through this holiday season. It makes sense, after all, we’ve been off schedule, off therapy, and really just off.

What is dysregulation? It is defined as the following:

“Dysregulation, also known as emotional dysregulation, refers to a poor ability to manage emotional responses or to keep them within an acceptable range of typical emotional reactions. This can refer to a wide range of emotions including sadness, anger, irritability, and frustration.”

The effects of dysregulation can be mild or severe, but in our case, as the holidays have come to a end, and as our normal schedule is supposed to resume, calling it severe is an understatement. In general, emotional dysregulation involves having emotions that are overly intense in comparison to the situation that triggered them. This can mean not being able to calm down, avoiding difficult emotions, or focusing your attention on the negative. Most people with emotional dysregulation also behave in an impulsive manner when their emotions (fear, sadness, or anger) are out of control.

As I sit here and write this, I begin to feel the guilt creep in. I know I handled this mornings outbursts poorly. I feel like I’ve  been stuck in a hurricane of my children’s volatile emotions, and that has slowly chipped at my patience. I struggled this morning, as I’ve been struggling the past 2 weeks. Struggled with screaming at the kids “why don’t you have shoes on yet? I’ve asked 48 times!” “We’ve got to go! We are running late!” “Can you please for the love of all things, just put on your dang coat?!? GUYS WE ARE RUNNING LATE!”

I know this sounds like a typical parents morning, but the majority of them don’t have 2 dysregulated children,  one of whom is taking turns playing dead on the ground with screaming back at you they want to die and hate everyone, while the other tries to hit you and screams “this is the worst day of their life” and slams doors/hits the walls.

I know when the adult is dysregulated, the chances of the kids getting regulated are slim to none. Typically my children rely on me to be their emotional regulator, so when I’m not regulated, utter chaos breaks out. We are all left drained. Empty. Sad. Disappointed.

I know it won’t be long until we are snuggling again, but it definitely takes longer for the pain from these moments to fade. However, I live for the good moments in between. I try to keep the memories of the happy and fun times in my head, as a balm to ease the tougher days.

I’m not sharing this for sympathy, but rather insight. To show those of you who struggle with mood disorders, either with yourself, child, spouse, etc, that you’re not alone. For those of you who don’t have this struggle, but who could use a reminder to give a little extra patience to the woman or kid who is a little short with you today.

The post “I Hate Everyone. Kill Me Now” appeared first on Not So SuperMom VS Society.

When most people think of skateboarding, their first thoughts are usually something along the lines of misfit teens, punk rock, or maybe even guys like Tony Hawk. What they don’t think about, is just how amazing skateboarding is for kids who need occupational therapy. Kids like Everett, who are on the autism spectrum. Kids like Finn, who need help with impulse control. So today I’m going to highlight the awesome benefits of skateboarding for kids with special needs.

Surprising Benefits of Skateboarding

From the time children with autism are toddlers, they are placed into Occupational Therapy which is needed to develop motor, proprioceptive, vestibular skills and more. Skateboarding offers nearly every component of Occupational Therapy, which is why many of these children “crave” to skateboard. It stimulates parts of their brain that trigger focus, hand-eye coordination, and more. Here are just a few of the health benefits:

• Coordination – Skateboarding improves hand, eye, leg and feet coordination. When skateboarding, you need to alter your movements so you skate smoothly and accurately.
• Pain Tolerance – Other sports improve your pain tolerance, but learning how to skateboard includes constantly falling, tripping, cutting your knees and elbows, etc. Believe it or not, this helps to improve your tolerance and build up resilience.
• Stress Relief – Stresses consume people, even kids, all the time. Skateboarding is an avenue to relieve some of those stresses or frustrations.
• Precision – Skateboarding takes a lot of precision to master. You are constantly adjusting weight from one direction to another, switching your speed, and, when good enough, perfecting tricks.
• Reflexes – This one ties together with coordination. When falling or stopping quickly, you need to have quick reflexes to brace yourself or prevent a collision from happening. You learn quickly that running into a railing is not ideal.
• Patience/Behavior Management– Skateboarding, like other sports, requires an immense amount of patience. You will not be the next Tony Hawk after your first time on the board. Falling countless times, missing that tricky bend, and hitting that awesome trick will test your patience time after time. When a skateboarder is having a bad day, annoyed with the world, feels like he could punch through a brick wall what does he do? He skateboards. Same as kids with autism, when their impulse control is almost lost, their anxiety is through the roof, and the screaming and crying is about to begin, break out the skateboard and you’ll find that it helps them work through their current behaviors.
• Social Development- skateboarding allows those who struggle with normal social interaction interact with peers on the level the individual feels most comfortable with.

Skateboarding offers many components similar to occupational therapy such as focusing on motor, vestibular and proprioceptive skills. Saturday skateboarding lessons are quickly becoming one of the boys favorite things to do. Both boys have a weak core and crave high impact activities. Everett has poor motor planning and balance issues, while Finn has poor impulse control and anger issues. Skateboarding is helping tremendously with both. Learning self/impulse control and behavior management is a huge part in why I decided to start the boys with lessons. And perhaps, most importantly, it’s also pretty freaking fun!

Skateboarding has had such a amazing impact on kids with autism that there are several nonprofits that have been created to help connect and introduce skateboarding to those the spectrum. There are even studies that have popped up specifically to research the correlation of brain activity and heart rate between autism and skateboarding. It’s even been approved as an acceptable form of occupational therapy in several states.

Hopefully, with these studies and nonprofits, skateboarding will no longer be looked at as a rebellious pasttime by those who don’t understand it and more funding would be available for using skateboarding as a therapy rather that funding just another information autism organization out there.

I know that right now, the boys have found an outlet they both love and I couldn’t be happier with their awesome teacher and their continued progress. I hope they continue to find joy in skateboarding and that the benefits continue to carryover into other aspects of their lives.

The post Skateboarding On The Spectrum appeared first on Not So SuperMom VS Society.

“I want to die. I don’t love you anymore and you’re not my friend anymore. I hate you.” These are about the last things you’d ever want to hear your child say to you, though you might expect it from an overly emotional teen. Unfortunately, I don’t have a teen and these words were screamed at me by my three year old, Finn.

Finn was recently diagnosed with ODD. ODD or Oppositional Defiant Disorder might be a term you’re not so familiar with. A quick Google search defines ODD as:  an ongoing pattern of behavior that is characterized by anger, irritability, as well as argumentative and defiant behavior towards those in authoritative positions. I’m guessing that sounds like every 3, 4 and maybe 5 year old out there to you, right?  Well, not so much.

If you go on to read further, this behavior can be something that kids only exhibit at home or at school, maybe not both. Also, it lasts for a long time, and happens quite frequently. More so than your typical child, even toddlers, as crazy as they are. And this is where I’d like share my story of being a mother to a child with ODD.

Donning My Armor

We’ve been dealing with the “I hate you’s” for a couple months now, but the “I want to die” is new, and it HURTS. Quite frankly,, living with and loving Finn is painful and hard. You have to develop a thick skin, or you’ll quickly devolve into tears. It feels akin to being in an abusive relationship- you never know what will trigger the next explosion, so you’re constantly walking on eggshells.

Before you rush to judgments and try to tell me that Finn “seems normal” or that he’s just “high spirted” so it clearly must be my parenting, I ask that you try to put yourself in my shoes. Raising Everett is tricky, but it’s nothing compared to Finn. Everett had clear issues that I was able to work with at home and therapy. He thrived once he started getting therapy, and unless you spend significant time with Everett, you may not even realize he’s on the autism spectrum. Finn is, for lack of better words, utterly chaotic.

I find myself dreading the simplest tasks with him. Taking him to a playground or friends house is a constant struggle. He manages to make EVERY SINGLE THING into a weapon. Sticks, blocks, trains, etc. I’m constantly waiting to see which child will be his next target. When he’s corrected, he frequently screams “I hate you” and I feel the eyes of other parents staring at me, silently judging.

Don’t get me wrong, he can be the sweetest and cutest child. He loves being snuggled by me and tells me the sweetest things about how much he loves me, but the second I say or do anything that upsets him, boom, the Finn bomb explodes with vitriol. I’m dodging toys while he screams insults at me, all because I asked him to do something simple, like pick up a toy.  And this goes on all day.  Twenty four hours a day, seven days a week.

No matter how well I put together my emotional armor, he still finds a way to get through my cracks. I’m to the point where I’ve officially been emotionally beat down. The thought of doing anything with him fills me with anxiety. I dread the thought of him getting older and even more potentially violent. I worry constantly about his future and if we will get lucky and he’ll “grow out” of it.

Don’t get me started on the mom guilt side either…You think to yourself, “Gosh, I’m such a horrible mom, I dread the park because I can’t just let him play, what’s WRONG with me”? And then things are bad, and you cry.  And you feel so angry, and sad, and resentful.  And hurt. You’re so hurt, that the next time your child wants to be with you, hug you, love you, it’s hard.  Because you’re a human being with feelings, and it’s hard to let go.  So then, you feel guilty. You feel guilty that you resent this child that you do love SO much, but that you don’t feel like “liking.” And then you find yourself pulling away. Because you’re scared of those feelings. So, somewhere, in the back of your psyche, subconsciously, you pull away.  Shut down. Try not to feel because it’s too much. You feel alone.  Isolated.  People don’t understand.

You’re even at the point that when someone says, “I bet you love being a stay at home mom,” you feel angry. They’ve said nothing wrong, but in the back of your mind, you’re thinking, “HOW CAN YOU SAY THAT WHEN YOU KNOW WHAT I’M GOING THROUGH”?  But, they don’t really know, do they?

“He Looks Normal”

The rub of all of this? He presents so typical for short periods of time that I am already having issues getting him help through our school system. From the outside, things look OK. Here’s this beautiful, thoughtful, highly intelligent little boy, who can act like an angel for strangers. Can charm and be friends with any child around him. At home, that same child can be verbally mean, physically abusive, manipulative, and so defiant that asking anything of them is almost pointless. So, people think you’re overreacting. That you’re just overly sensitive to normal childhood behavior.  And you start to think that maybe you are crazy.  Not good enough. Inadequate. That it’s your fault. 

There’s a Jekyll and Hyde situation going on. And nobody sees. And you can convince yourself that nobody cares and that you’re not going to make it. And if I’m being honest, I’m feeling like that most days.

Moving Forward

Right now, we’re in the trenches. Fighting every day, living our truth, being honest, getting help, and doing what we need to do to survive. That means getting him even more therapy and better methods for interacting with him.

We just had him screened and he didn’t meet the qualifications for general special needs, so we are having to get him tested for other issues his pediatrician thinks he may have.  It’s so frustrating to know that he’s suffering from an invisible diagnosis and we can’t seem to get him the help that we so clearly need.

However, our story with Finn is just starting. I’m hoping it has a happy ending, but the harsh reality is that around 40% of children diagnosed with ODD don’t grow out of it and out of that 40%, half of them eventually develop antisocial personality disorder. So I’m going to fight like hell to try to avoid that path. I’m going to do what needs to be done to try to give him every tool he can use to battle this, and, I’m going to tell his story.

Why tell his story? People deserve to know it. Right now, I’m treading water, and sometimes find it overwhelming to do anything more, so I hope this reaches some people that are maybe struggling like I am. I’ve said this before, and I’ll say it again. Hearing the words, “I know what you’re going through” have such enormous power.

Welcome to our journey with Finn.

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